May 2022

Just thought I would check in here and let you know where things are for me. After a week of hyperthermia, I decided to stop having this therapy. While using the treatment I was beyond exhausted., however, this wasn’t the only reason I made this decision. The therapy has been studied with chemotherapy and radiation, but not with my treatment, which is endocrine therapy. So, not knowing how well it works with endocrine therapy combined with the fatigue and time the driving and treatment was taking, I decided to stop.

A lot of people ask me what my days look like. The answer isn’t simple. Some weeks I go to doctor’s appointments daily. Other weeks I have nothing on my schedule. Some days I sleep most of the day. Other days I do chores or hang out with friends and family. Sometimes I have bone and/or liver pain. Other times I have fatigue or headaches. Other times I feel decent. Thankfully, the past two weeks I have had many days where I’ve had energy in the morning! It’s been wonderful. I’ve used these times of energy to organize my house and backyard. I have not been working since last June and just recently applied for permanent disability.

I recently was interviewed for a podcast that my church does to interview members. It was fun, but wayyyyyyy out of my comfort zone! If you would like to listen, you can find it here: Podcast Interview

Lastly, I am told daily that I don’t look sick. I appreciate that, but it’s weird to be so sick and only those that live with me can really tell. I wrote a piece about this strange situation here: Looks Can Be Deceiving